I’m writing to share the story of my life with multiple sclerosis, and to learn about yours. This is a crazy mystery disease, and as you probably know by now, no two people have the exact same symptoms or found out about it the same way. My hope is to clear up some of your confusion and let you know that you are not alone in this!
I have been fortunate enough to be part of a kind and positive MS Connections group for the last two years or so, and I recently wrote up some questions about their “newly diagnosed” days. They were happy to share their thoughts with me so I can share them with you. I started with the very beginning of this roller coaster ride, asking,
At what age were diagnosed with MS, and did you have support to deal with that news?
Of the eleven people who answered, the ages ranged from 19 to 63, and all but one had loving family and social support to help them manage the diagnosis, staying by their sides while they tried to accept their scary new health status. I truly hope that you had this too. Because really, what the heck is MS???
This is how it started for me…
I turned 35 in March of 2014, and was feeling pretty darn good. I had two jobs I was enjoying, proofreading for some wonderful authors and making memorial jewelry for a kind woman’s new business. They were long hours with tight deadlines that got pretty stressful at times, but I was reading and crafting and getting paid for it. Not bad! But unbeknownst to me, the stress was too much and it set the ride into motion, beginning with the slow climb to the top of the first hill, not knowing what to expect….
My husband and I have a sweet son who was just 4 at the time, so we were getting together with his friends and ours to play as much as we could when we weren’t working and he wasn’t in preschool. I wanted to get fit when out of the work chair, so I did a 30-day squat challenge and felt strong and healthy, ready to wear a bikini and hit the beach with my guys. All good! Or so I thought….
Things started to get strange in June. My incredible hubby and I got a weekend off of parenting to join his family in Las Vegas for a cousin’s tenth anniversary celebration, but boy was it HOT!!! Thank goodness for a/c in the hotels. I just didn’t feel quite right the entire time. Forward a couple of weeks to the Fourth of July, and I had reached the top of the coaster and started the downward plunge…but I had to trip on our way home from the beach, get sick from (I thought) the two strong beers I drank, crash on the couch, and miss a good chunk of the fireworks. So begins the twisting and turning part of the ride….
I’ll fill you in on what it took and how I was diagnosed next time, but long story short I was 35 with an amazingly supportive husband, a patient child, generous parents, and loving friends and family all around. They made it so much easier, knowing that I had people in my corner who would do all they could to help me with this madness.
I was not alone, and neither are you! I’m here for you.
Please comment below about the beginning of your ride. If you feel like you could use some professional guidance from someone who’s going through this too, sign up for a free consultation with me and together we can get you back on track to a place of Remembering Wellness.
Yes, you can be healthy with MS!